Showing posts with label Alzheimer's. Show all posts
Showing posts with label Alzheimer's. Show all posts

Sunday, August 18, 2024

Where a patient lives may be the biggest factor for a dementia diagnosis

A University of Michigan study found significant regional differences in the likelihood of receiving a dementia diagnosis in the United States, which could have profound implications for accessing new treatments for Alzheimer's disease and other forms of dementia. The research found that the percentage of people diagnosed with dementia each year varies widely across regions, with particularly stark differences for those aged 66 to 74 and individuals who are Black or Hispanic.

The study, published in Alzheimer's & Dementia: The Journal of the Alzheimer's Association, suggests that where a person lives may play a more significant role in whether they receive a dementia diagnosis than individual risk factors. According to the findings, someone in one region of the U.S. could be twice as likely to be diagnosed with dementia as someone in another region.

Julie Bynum, M.D., a U-M Health geriatrician and lead author of the study, emphasized the need to address these disparities. "These findings go beyond demographic and population-level differences in risk and indicate that there are health system-level differences that could be targeted and remediated," said Bynum in a statement. She noted that the variation in diagnosis rates could be due to differences in health care practices, patient knowledge, and care-seeking behaviors.

The study analyzed data from 4.8 million Medicare beneficiaries aged 66 and older in 2019, focusing on "diagnostic intensity" across 306 hospital referral regions (HRRs). Researchers found that while nearly 7 million Americans currently have a dementia diagnosis, many more likely have symptoms but remain undiagnosed. Access to advanced dementia treatments, including new medications and diagnostic tests, requires a formal diagnosis.

The study found that the prevalence of diagnosed dementia ranged from 4% to 14% across HRRs, with new diagnoses in 2019 ranging from 1.7% to 5.4%. After adjusting for various factors, including education level, smoking rates, obesity, and diabetes, researchers calculated that people in low-intensity areas were 28% less likely to be diagnosed with dementia, while those in high-intensity areas were 36% more likely.

The concentration of dementia diagnoses was highest in the southern U.S., but this pattern shifted once researchers accounted for other risk factors. Bynum suggested that the variation could stem from differences in clinical practices, such as how frequently primary care physicians screen for dementia or the availability of specialists.

Bynum called for increased efforts to ensure early identification of cognitive issues, especially in younger Medicare populations. She also encouraged individuals to advocate for themselves to receive cognitive screenings, which are covered by Medicare during annual wellness visits.

Bynum highlighted Medicare's recent GUIDE model for dementia care as a potential avenue for improving care coordination and access. This new model incentivizes clinical practices to provide better dementia care and offer 24/7 access to trained providers.


  Dementia Signage for the Home

 

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Sunday, January 21, 2018

FINDING STRENGTH IN CAREGIVING BY KAMARIA MOORE

Guest blogger: Kamaria Moore



Hi everyone,


My name is Kamaria Moore and I am the primary caregiver for my mother, Mary. She was diagnosed with early onset Alzheimers at 58, when I was 28. She is now 59 years old and I’m 31. My mom was previously living independently in a three-story family home, but recently has been hospitalized. Doctors have been unable to determine her diagnosis, so we’re in a state of limbo where we don’t really know how long she will be there and what her functioning capacity will be afterwards. I am spending as much time with her as I can at the hospital, and I take care of all health care, living logistics, and fiscal responsibilities.


My husband and I just got married on May 7th and celebrated our honeymoon in Puerto Rico. I work for the state of Massachusetts. As difficult as it was not having my mother to assist with wedding planning, it was even more difficult not having her at my wedding because of her sudden hospitalization. The juxtaposition of one of the happiest days of my life with serious concern over my mother’s health was incredibly difficult for me, but we still managed to have an awesome time and showed her all sorts of pictures and videos afterwards.The Massachusetts/New Hampshire Alzheimer’s Association chapter has been incredibly helpful to me, and was instrumental in helping me line up initial supports when we received the diagnosis. One example was a support group for young people whose parents have early onset. I attended this group pretty regularly for about a year, but I often felt like I shouldn’t say anything because my experience was so different from everyone’s. I was the only person of color, and most people’s parents had either a husband or wife to assist in the caregiving. Because of this, their experience was mostly about enjoying their role as caregiver, and being able to enjoy the time spent with their parent. While I appreciated everyone’s shared experience, I felt like I couldn’t honestly express the difficulties I had with being a caregiver. This feeling led me to want to share my own story, which led me to this profile.


During this time, I have recognized my own strength. I have cared for both my parents off and on since 2007, and during this time have been able to obtain and keep full time employment, maintain healthy relationships with friends and family, purchase a home and get married. I am becoming someone who can balance life really well, including balancing care for mom with care for self. I’m strong enough to be there for her and know that it is ok to want my own life, although it is still something I struggle with often. I have learned that it’s okay to maintain my own life and happiness in order to be the best caregiver possible.


I’ve been able to use resources to fill in the gaps. My mom has really found a place in church so my cousins take her and it gives me a break. I’ve learned through caregiving that my strengths are logistics, so I take care of those, and my family takes care of providing her a social and emotional output. She attends an elder service day program which provides her with social interaction and support. She still maintains a few hobbies, including coloring which she is really proud to show off!


If there’s anything I hope comes from this profile, it’s that someone out there sees it and sees a reflection of themselves and their stories in it, and for just a second feels a little bit better.

  Dementia Signage for the Home


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Weekly Planner (Bright Pink) Memo Pad



Dementia Signage for the Home

Behavior Triggers Log (Sky Blue) Memo Note PadBathroom Door Sign-Temporary/Reusable Wall Skins




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EZ-C Bright Green 3 Ring Binder binders






Saturday, December 23, 2017

Tips for Caregivers – Communication Techniques

“It’s not always what you say but how you say it.”

  • Speak slowly and clearly
  • Be aware of body language
  • Use visual cues
  • Approach from front
  • Address by name
  • Meet at eye level
  • Short questions, one at a time
  • Break down tasks into one step at a time
  • Repeat using same wording, if that doesn’t work, rephrase
  • Avoid negative statements (don’t use “don’t”)
  • Allow adequate time for response
  • Utilize humor
  • Keep talking even if nonverbal

Communication is hard because person cannot remember things, can’t find words, difficulty understanding what is said, difficulty paying attention, remembering steps, blocking out background noise, being sensitive to touch, or tone or loudness of voice.

To Help Make Communication Easier:


  • Make eye contact
  • Call the person by name
  • Be aware of your tone and how loud your voice is
  • How you look at the person
  • Body language
  • Encourage 2-way communication as long as possible
  • Gentle touching
  • Try distracting/redirecting if communication creates problems
  • Be open and agreeable even if the person is difficult to understand
  • Let them make some decisions and stay involved
  • Speak at eye level
  • Offer simple step-by-step instructions
  • Repeat instructions and allow more time for response
  • Don’t talk about the person as if he or she isn’t there
  • Don’t use “baby talk” or a “baby voice”
  • Ask yes or no questions
  • If they make a mistake say, “let’s try it this way”
  • Say “please do this” instead of “don’t”
  • Limit choices – do you want chicken or beef?
  • Instead of asking if they’re hungry say, “dinner is ready”
  • Try not to say “don’t you remember?” or “remember when”
  • Use visual cues